Additional Resources

 

This page holds all the sources used by Project Zebra to help create this website! The articles and websites below vary in terms of the depth of information and specifyity*. All are good resources to use for your research on EDS.

 

*Fair warning: some of these sources are very technical and may be hard for the average person to understand. Such sources will be marked with an astrisk.

 

http://www.ehlers-danlos.org/about-eds/getting-a-diagnosis/how-to-prepare-for-your-appointment/

              This site has some helpful tips about talking to your doctor and getting the help you need.

 

http://ghr.nlm.nih.gov/condition/ehlers-danlos-syndrome

 

http://www.hindawi.com/isrn/dermatology/2012/751768/

 

http://www.nlm.nih.gov/medlineplus/ehlersdanlossyndrome.html#cat1

 

http://psychcentral.com/lib/living-with-chronic-pain-and-depression/00016150

 

https://www.orpha.net/data/patho/Pro/en/Ehlers_Danlos_En.pdf

 

http://ghr.nlm.nih.gov/condition/ehlers-danlos-syndrome/show/Educational+resources

 

http://www.ncbi.nlm.nih.gov/books/NBK1494/ *

 

http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2141.2008.06994.x/pdf

 

http://hmg.oxfordjournals.org/content/7/2/249.full.pdf+html?maxtoshow=&hits=10&RESULTFORMAT=&fulltext=ehlers+danlos+syndrome&searchid=1&FIRSTINDEX=0&resourcetype=HWCIT *

 

http://services.oxfordjournals.org/cgi/searchresults/fulltext=ehlers+danlos+syndrome&simple_search_submit=Search *

 

http://www.uptodate.com/contents/clinical-manifestations-and-diagnosis-of-ehlers-danlos-syndromes

 

http://www.ncbi.nlm.nih.gov/books/NBK21582/ *

 

http://www.patient.co.uk/doctor/ehlers-danlos-syndrome-pro

 

http://www.socialstyrelsen.se/ovanligadiagnoser/ehlers-danlossyndrom

(This is in Swedish, unless you are fluent in Swedish, you will need to translate this page. Google Chrome’s translator works well enough to make this understandable)

 

http://www.orpha.net/consor/cgi-bin/OC_Exp.php?lng=en&Expert=1901

 

http://www.medicinenet.com/script/main/art.asp?articlekey=34257

 

http://ghr.nlm.nih.gov/gene/PLOD1

 

http://www.ncbi.nlm.nih.gov/books/NBK1462/ *

 

http://ehlers-danlos.com/

Formerly the Ehlers-Danlos National Foundation (EDNF). This is one of the leading EDS foundations in the US/world

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http://www.ehlersdanlosnetwork.org/Media-Information.html

 

http://www.chronicpainpartners.com/

 

http://www.chronicpainpartners.com/attention-doctors-an-eds-patients-bill-of-rights/

 

http://www.chronicpainpartners.com/brochure/

 

http://www.ehlersdanlosnetwork.org/advocacy.html